DIPG is a brain cancer, which is considered rare. However approximately 300 kids per year are diagnosed. It is a tumor located in the pons of the brainstem, making it inoperable. Radiation is currently the only "treatment", but is only given to buy more time with your child. It mostly affects children between the ages of 5 and 9, and is typically fatal within 9 months. My son lived just under 6 months after being diagnosed with DIPG. He passed away in my bed on March 26, 2017 at 2:21pm.
DIPG is highly agressive and does not discriminate. It takes away the child's ability to swallow, talk, walk, and breathe, eventually taking their precious lives. DIPG receives less than 1% of the funding available through the National Cancer Institute. Most of the funding DIPG receives is given by parents and families of children who have lost their battles with this horrific cancer.
My life's mission is to raise awareness and funding for the future of DIPG patients so no parent will ever live this reality again. I had never heard of DIPG before September 30, 2016, the day our lives changed forever.
All proceeds from these items goes to fund DIPG specifically.